Jeff Henigson was diagnosed with brain cancer at the age of fifteen. He was told the cancer would kill him within a few years. Thirty-five years later, Jeff’s miraculous and fascinating survival story was published online. After his story became public, he was contacted by a neuropathologist.
Here is part of their conversation as reported in The Washington Post:
“I felt compelled to reach out because it is simply so unusual that you survived anaplastic astrocytoma.”
“So I’ve been told.” I’d seen dozens of neurologists over the years at some of the top medical institutions on both U.S. coasts. They had all said essentially the same thing. The average life expectancy for a brain tumor like mine was two to three years.
“And yet despite this being extraordinary, you nevertheless believe that this is what you have managed to survive?”
My head jerked back. “Excuse me?”
“I am asking you.”
I was close to hanging up. “What exactly are you asking me?” I said.
“I am sorry. I am perhaps not clear. English is not my first language.” He paused. “May I share a story with you?”
I sighed and rolled my eyes. “Tell me your story.”
I highly recommend reading the article in full.
When you’re done reading the article, you’re going to feel compelled to get your hands on your own medical records.
How to Get Your Own Records
If you go to a doctor, lab, hospital, or imaging center, you can and should request your records in full including all results, physician and nursing notes, and imaging on disc. You may have to physically find the health information management department, medical records department, or radiology library. Many hospitals will now be providing easy digital access to physician and nursing notes due to a new government mandated initiative called “open notes.” This should make it easier for you to review your physician’s notes without having to track down your records via faxes and snail mail.
Third-Party Medical Record Retrieval and Digitization Service
I’m testing a new service from a company called PicnicHealth. Their web service will collect, digitize, and tabulate all of your medical records, labs, and imaging. After you sign a release form, pay $300, and submit the names of the hospitals, labs, and doctors that you’ve visited in the past, PicnicHealth’s team will track down and digitize your records within 4-6 weeks. For $39/month, they’ll keep your records up to date.
Sign Up for Education & UpdatesReceive a newsletter designed to bring you up to 3 educational and actionable items in health, nutrition, fitness, and diagnostic and preventive medicine. Newsletters are released no more often than twice per month.
Interested in past editions of the newsletter? Check the archives.
The information on this site does not constitute medical advice or personal recommendation. This website and its content does not constitute the practice of medicine, nursing, or any other healthcare profession. Your use of this site does not constitute a doctor-patient relationship. The use of the information on this site is at the user’s own risk. You should not delay or neglect to obtain medical care. Please consult your own personal physician for medical questions or concerns. Please use your local emergency services for any medical emergencies. See my full disclaimer
This website contains links from affiliate programs including but not limited to the Amazon Associate program (As an Amazon Associate I earn from qualifying purchases). It is possible that purchasing a product, signing up for an account, or taking other actions from a link on this website may result in a commission being paid to Kornweiss Medical LLC. This website is otherwise free to its users and free of advertising. The product and service links on this website are for products and services that I have personally researched, tested, and/or actively use, and that I believe to be beneficial. A sincere thank you to anyone who finds this site useful and makes a purchase as a result.